OK guys, it's time for you to help me out again.
I have realised while browsing over the last few months that there is no definitive list of congenital heart support groups on the internet. There are some great partial ones but none that list them all. That's where I need your help.
I have created a new blog called "Congenital Heart Disease" and I would like you to go there and leave a comment mentioning congenital heart disease support groups that you know of. I will then add them to the list and hopfully we can get a good list going over the next few weeks.
So, please, please go there and leave a comment - as you will see - I haven't done much and I know of plenty that I will be adding over the next week.
Cheers.
2 Comments:
Hi Paul
Here are the Heart Kids organisations in Australia that have websites (there are also other states represented such as the Australian Capital Territory (ACT) and Northern Territory (NT) however they don't have sites).
Heart Kids Victoria
http://www.heartkids.org.au/
Heart Kids Queensland
http://www.heartkidsqld.org/
Heart Kids Western Australia
http://heartkidswa.org.au/
Heart Kids South Australia
http://www.heartkidssa.org.au/
Heart Kids New South Wales
http://www.heartkidsnsw.org.au/
Heart Kids Australia
To be announced
Heart Kids Australia is to be the peak body over all the other heart kids organisations and became a legal entity in June. I believe they will be launching officially in August (anytime now).
They are the organisation to which funds raised by The Special Zipper will be donated.
Hello Paul. my daughter was born with congenital heart disease. She died at just five weeks. I admire what you are doing and I'll be sure to get the word out there about you.
Post a Comment
<< Home